Use of Parent- and Patient-Reported Outcome Measures in Pediatric Specialty Clinics

What is the feasibility and acceptability of using a pediatric patient-reported outcome measure (P-PROM), EuroQoL 5-Dimensional Questionnaire for Youth, 5 Levels (EQ-5D-Y-5L), in routine outpatient specialty care?In this pilot randomized clinical trial with 87 pediatric patients and their caregivers, use of EQ-5D-Y-5L, implemented in a P-PROM intervention, was reported as feasible by most participants and acceptable by a majority of caregivers and clinicians.The findings of this study suggest that use of EQ-5D-Y-5L in specialty care is feasible and acceptable and that future research is needed into the quantitative impacts of the intervention on quality of care and outcomes.

Corresponding Author: Kim Dalziel, PhD, Melbourne Health Economics, The University of Melbourne, 207 Bouverie St, Level 4, Victoria, 3010, Australia (kim.dalziel@unimelb.edu.au).

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