Community Health Worker and Mobile Health Interventions for Quality of Life Among Young Adults With Sickle Cell Disease

What is the comparative effectiveness of a community health worker (CHW) program or a mobile health application (mHealth) on health-related quality of life (HRQOL) of young adults with sickle cell disease (SCD) transitioning from pediatric to adult care?In this randomized clinical trial of 375 young adults with SCD, HRQOL scores significantly improved between baseline and follow-up at 6, 12, and 18 months in the CHW and mHealth group compared with the enhanced usual care (EUC) group. The CHW plus EUC intervention showed the strongest improvement, and the mHealth plus EUC intervention demonstrated modest improvement at 6 months.These findings suggest that CHW support and mHealth programs hold promise for enhancing HRQOL for young adults with SCD transitioning from pediatric to adult care.

Corresponding Author: Sophia Jan, MD, MSHP, 2000 Marcus Ave, New Hyde Park, NY 11042 (sjan1@northwell.edu).

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